Hemophilia
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Embracing Life’s Complexities: A Journey of Hemophilia, Loss, and Redemption
Jay reflects on his life as a hemophiliac, the impact of HIV, and the loss of loved ones, including his sister Amy. He discusses commitment issues, parenting struggles, and missed opportunities. Jay emphasizes the importance of cherishing moments with loved ones and mending relationships before it’s too late. Continue reading
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Always Find A Way To Live Life To The Fullest
I, like most people, tend to hold celebrities in higher regard than non-celebrities. Christopher Walken is one of my favorite actors; Walter Payton ranks at the top of my list of heroes; and having dinner with Kevin Mitnick sits firmly at number 2 on my bucket list; (number one has been, and always will be,… Continue reading
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A Measure of Athletic Fitness
A few months back, I came across some interviews I did back in 2005. Finding them buried in the Area 51 of my computer archive inspired me to do some more. This time though, instead of focusing exclusively on the gaming community, I reached out to some of my Nerdcore friends and bleeding disorder community… Continue reading
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Bleeder Flashback
Part of this blog post has been running around inside my head for a long time, not exactly sure how to put it into words. Recent events in my life as a hemophiliac have allowed me to finally find the right words. This is dedicated to Vaughn Ripley, the Committee of Ten Thousand, my blood brothers… Continue reading
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A Boy Named Johnny
Following my interview with Vaughn Ripley, I was lucky enough to interview Johnny R. I’ve never actually met Johnny; however, I have talked to his mom a lot and given her insight into life as a hemophiliac. So, I will save you all the trouble of reading an introduction I couldn’t possibly write and let Johnny’s… Continue reading
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Superman Is Not As Innately Cool As Vaughn
If you’re a regular reader here, you know I am a hemophiliac. Three times a week, I inject (called infusing) a medication called Kogenate FS. Kogenate gives me the factor of my blood I am missing, the missing factor is what makes me a hemophiliac. What you might not know is that my formative years… Continue reading
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Stop Being Offended About Everything!!
If you’re a new reader here, I am a hemophiliac. Hemophilia is a hereditary genetic disorder that impairs the body’s ability to control blood clotting, which is used to stop bleeding when a blood vessel is broken. I lived though the hemocaust – a period of time during the 80s and 90s where the medication… Continue reading
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It Happens To Few Until It Happens To You
“Perception is reality,” as the saying goes. There is no denying media influences the views of its audience. There are innumerable examples of media, throughout history, portraying members of different “marginalized” groups in a negative light. There is also no denying this has had real-life consequences for members of each of these groups. There have… Continue reading
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Through My Eyes
Admin’s Note: This is such an amazing look at life through the eyes of a hemophiliac, I needed to share it with my readers. Thank you Vaughn Ripley for allowing me to reprint it. We often hear statements like, “Oh yeah… Well you should try walking in my shoes…” Today, I’d like to offer my shoes and… Continue reading
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Life Is An Attitude – Never Give Up!
I organized my first LAN party back in 2002 and have volunteered countless hours in the fundraising efforts of the Idaho Chapter of the National Hemophilia Foundation. I even organized and promoted my first nerdcore concert back in 2011, and being a nerdcore promoter is ultimately my goal for the future. So when I finally… Continue reading